Our journey in the Autism Spectrum

Posts tagged ‘jewelry’

Riding Shotgun

[ alternatively titled: the Rabinowitz Bubble Revisited]

Today is officially our first full day of summer break.  I haven’t written much over the last several months.  Well, let’s be honest.  I haven’t blogged at all.  I’ve really missed writing here but for me to write something down it takes time, quiet, and a lot of emotional and mental energy; none of which I’ve had much of this past school year.  At least regarding autism.

I’ve also had trouble coming up with something to write about.  All-in-all it’s been a pretty “typical” year for the Rabinowitz tribe.  Yes, autism still lives with us.   Autism has challenged us.   And, in the moments when I’ve watched Henry try to connect with some of his peers or not be able to do an activity because of bugs, autism has also broken my heart.  But that’s normal for us; the way things just…are.  I’ve written before about what I call The Rabinowitz Bubble.  That’s where I’ve been living this past school year.

We’ve had great successes and we’ve had challenges.  More often than not, I’ve shared small snippets of these on my Facebook page.  And that’s been enough for me.  In our family bubble I don’t feel the need to go into every minute detail of our lives and what living with autism is like for us.  It just IS.  When I think about it, that’s the big part of my not blogging these last many months.  Because really, “typical” is rather “boring” isn’t it.

I’ve enjoyed being “boring”.  As many, many (too many, really) of you know, autism is often a daily, 24/7/365, in-your-face, way of life.  This past school year I’ve been able to scoot it aside, for the most part, and let it sit next to me.  It’s refreshing.  I’ve been able to concentrate more on building a business. (Yeah, that’s a shameless plug. Deal with it.)  I’ve also worked on my fiction, both reading it and writing my own.  I’ve been able to become more involved in Molly’s high school band.  Although, that’s a bit insane of me.  I’ll admit I’m not sure what I was thinking on that one!  And even more crazy for me is, as of 6 weeks ago, I began running.  Well, technically “wogging” (walking/jogging) but still, Runkeeper calls it running.  So, “running” it is because it makes me feel better about the whole madness of it.  I’ve actually been able to go a few hours without thinking about autism at all!  Seriously.  I can hardly believe it myself!  I think I must be learning to compartmentalize it better.

All of this gives me hope that perhaps, some day, autism will take a backseat in our lives.  Yeah, I’m sure at times it will be one of those annoying backseat drivers and even occasionally jump back up into the driver’s seat.  That’s okay.  That’s what it IS.  For now, this summer, I’ll be content to let autism ride shotgun.

 

Beading With The Dude

From very early on I have always been searching for ways to connect with my son. A way we can do things together, being able to talk  about whatever that may be or just having a chat while we are working together. Our first activity together was baking. It was the one thing we did together where Henry was engaged in the activity and with me. He loved measuring and listing the ingredients and numbering the steps needed to get to the finished baked good. Oh, and of course, sampling!  From about the time he was two until he was almost four, we baked like nobody’s business and had a freezer full of tasty breads, cookies, muffins, and pies at any given time! That activity eventually waned and he moved on to building and inventing things and with this Henry prefers generally to work alone, envisioning designs that only he alone can see. In a way, this move away from baking was probably a good thing for healthier living in the long-run.  But since then I continually try to look for things that he and I can do where there is that real connection. A true mutual participation in a shared project.

Did I mention we also love to sample?

Recently I have acquired a new hyper-focus. Jewelry making. I have been having so much fun with it and the little ones love all the pretty colored beads and stones and charms. Of course, it is easy to make bracelets, anklets and necklaces for the girls. For Henry, it is a bit more challenging for me. For one, I am just not that skilled so I am limited in that way but also because well, “boy” jewelry is just hard.

My friend at Crow Steals Fire made Henry this great bracelet made of green leather with a copper disk stamped with a robot for the charm. It is really cute and Henry loves it except that he says it tickles his wrist so he won’t wear it for long.

He loves the beads and stones and sees the jewelry the girls are wearing and he has been asking for bead jewelry of his own. The pink and blue beads are his favorites but today I was able to influence him toward “real grown-up dude colors”. So away I went, swimming in a sea of seed beads. He was pretty patient for a long time (relatively speaking) and then he couldn’t take it any more.

After a string of questions every few minutes, “Are you done yet?” “When will it be done?” “Now?” “How much longer?” Finally, he started asking if he could help. Oy! I imagined beads everywhere, parts and pieces on the floor, counter and chair. He began messing with my tools, digging in the beads. At this rate I told him it was going to take me even longer! I wasn’t even halfway done. Then he was the one that came up with a brilliant idea.

“Well, can I help? I could hand you the beads you need.” Wow! Fine motor skills has never been one of Henry’s strong points and is pretty much NEVER a choice that he makes!

*palm to forehead* Duh!

“Well, that’s a great idea, Henry! Sure you can help but you need to listen and follow directions.”

He chose his tool he wanted to use as a tweezers and for half an hour he handed me seed beads, one at a time. (Talk about a fine motor skills work-out!) He didn’t want to string them himself but was just thrilled to be using a tool and helping! We talked about the colors of the beads and how tiny they were and how many there were. We counted them. We chatted about his favorite shows and even included Lucy in our conversations and we discussed her recently acquired jewelry. Connection! Love it!!!

And not only did he practice fine motor skills  and following directions he was able to revel in a sense of accomplishment! He was so proud of the necklace he helped to make! Since yesterday he has worn it quite a bit. I think because of the weight of it, it doesn’t feel “ticklely” to him and the fact that I put a magnetic clasp on it for him (he LOVES magnets) he can take it on and off by himself.

I don’t know how long he may be interested in this new activity or if he’ll even want to do it again, for a short while yesterday, we really, really connected!

Henry’s gear necklace.

Dude!

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