Our journey in the Autism Spectrum

Posts tagged ‘BPAL’

A Long Way to Cologne…

…where ridiculous resides and because I always seem to take the long way around a story:

My little dude is funny. Except, after BDC taking him shopping for new sneakers tonight, and finding that his feet are quickly reaching my size (he’s only 8!), he’s not truly” little”. Though I will probably refer to him as my “little dude” for the rest of his life. (So, Henry, you have been warned.) But I digress.

Later in the evening I walked upstairs to corral the little (see, I can’t help myself) chameleons to bed while BDC worked on getting pictures off of my phone and into my computer. Because sometimes I’m technically challenged.  Anyway, it’s a cool evening so the windows are open and our attic fan is running. When I got to our bedroom (because the kids have claimed it as their own and are watching TV in there)  I smelled something strangely odorous.  Like perhaps there was a dead animal nearby in our neighborhood, or more accurately, right outside our bedroom window.

The following conversation ensued.

ME: *scrunching my nose*  “What smells in here?”

Of course, I try to identify it and find the source.  I go over to our window to see if it’s stronger there. You know, sort of like, “Oh this milk is sour! Taste it!” Only in this case I was inflicting this upon my own olfactory senses.  Again, I digress.

As I am unable to discern where said smell is coming from, I turn back to the kids.

HENRY: “Heh, heh!”  *said devilishly*  “That must be me you smell.”

ME: “YOU smell?”   *then I realize I can’t remember the last time Henry had a bath*

HENRY: “Yeah, come smell me.”

* again with the sour milk…?  I move hesitantly toward him.*

HENRY: “Dad and I were trying some man cologne while we were at Kohl’s.”

ME: “Oh!”  *laughing*  “Did you really?”

HENRY: “Only two kinds. Smell.”  *he pulls his t-shirt away from his neck so I can get a good sniff*

ME:  “Hey, that smells pretty good!”  *said with a bit of surprise*  “That’s not what I was smelling a second ago.”

HENRY: “Ohhhh, yeahhhh!”  *nodding his head, giving me the smooth-move-finger-gun motion and an attempt at a wink*  “Dad should get two bottles of each and I should get two bottles of each for four bottles and I should wear this twice a day.”

Well, on the upside, I wouldn’t smell that dead animal smell with Henry bathing in two different types of cologne twice a day.  Although, we  probably would all end up not being able to smell anything after that, rendering any kind of scent a moot point.  (I did mention the long way around, right? Keep reading. It’s almost the end. Really.)

By this time I’m getting the kids tucked in their beds and of course, Lucy has chimed in on the conversation.

LUCY: ” Henry, you can’t wear that!”

HENRY: “I might wear it THREE times a day!  Maybe even FOUR! Ok, maybe just two. I can SO wear it, Lucy.”

LUCY: *laughing*  “Ewwww! No you can’t Henry!  You can’t even date yet.”

HENRY: *matter-of-factly*  “Well, that is true.”

ME: “You don’t have to date to wear good smells. Remember, Henry, you used to wear Mad Hatter? And you really liked that.”

HENRY: “Well, yeah.  I should probably wear man cologne more often. You know, because a man likes to smell good.”

*shaking my head. Good gods, how did I land on this planet and with these kids?!? *

So, there you have it. Because honestly I don’t know how to end this ridiculous story about an equally ridiculous conversation. But it made me so happy to see my kids laughing and being utterly serious and silly at the same time.  For me, that’s reason enough to take the long way to cologne.

Coping…??? Not so much.

As I begin to type this, it is just minutes before 6:00am CST. I have now been up since around 3:30am. Henry woke up with a dream. He didn’t say it was a bad dream, he just wanted me to lay with him for while. Hard to resist when he just wants some quiet snuggle time. At 4am I crawled back into my own bed but could not get back to sleep.

My mind was racing all over the place. And then suddenly my stomach seemed to leap up into my throat. I forgot to pay our Discover bill! Damn! I glanced over at my clock which was  glaring red. 4:32am. Double damn! My alarm was set to go off in about 15 minutes anyway so I hauled myself out of bed and down to my office cursing myself all the way. I quick threw some money at the credit card bill via online bill pay as if that would make it all go away. I was dreading having to tell Grant that our bill was going to be late. He probably wouldn’t be up for at least another hour. I spent the next hour or so feverishly working to clean up my office space, get bills in order, and organize our donation lists (with pictures) for itemization for future income tax returns. As if this would help erase or make up for the late bill. In case you are not up to speed on the whole spring cleaning/donation fiasco you can catch up here and here.

Grant knows I haven’t been coping well. I can’t seem to get anything done or keep track of anything. I am overwhelmed by the little things so then too the bigger things are doubly overwhelming. I am forgetting things. Losing things. Often.  Last night Grant watched me tear through one of my cabinets looking for a lid to a container all the while ranting to myself about how “the lids always disappear!” and “where the heck can they possibly go? Who uses a lid without the container? What would you use just the lid for?” I was feeling a bit crazed and this missing lid was about to push me over the edge. Just as I was about to search for another container with its lid, I saw the missing lid sitting on the counter, where I had put it while I was filling its partner. Oh.

Grant: “Babe, are you okay?”

This was just one of my many questionable “episodes” as of late.

Me: “No. Not really. No.”

He looked as if he was trying to absorb and process my response and just ended up looking at me helplessly.

I remember an e-mail I received some months back from my friend, *Hermione*, in response to one of my blog posts. I laughed at her perception the first time I read it and certainly it gives me a good chuckle right now.  Hermione has a daughter *Rose* who is just 6 months older than my oldest daughter, Molly. We have commiserated over the years through the pre-tween, tween, and now teen years.

From Hermione: I have been reading your blog…. You are quite articulate.  You describe so well the mixed emotions…. Happy to have a diagnosis that will give Henry the assistance he requires but all the scary negative emotions of the diagnosis, which is still hard to hear, even though you said you knew it was coming…

 Anyway, you sound amazingly skilled at handling all this. *Ron*  and I are barely able to cope with a “normal” teen…. Thinking of you and Grant and Henry and sending positive energy your way.

Articulate? Amazingly skilled? Are you kidding me? Upon my first reading her e-mail, I was immediately questioning that she even was reading MY blog!

She goes on to tell me what she’s been up too; working, reading, quilting (or rather, her not quilting),  and how she and Ron are constantly at odds with Rose, how Rose wants her room painted black and Hermione’s attempts to make is less black by trying to compromise.

“…. So although she may view it as “goth/modern”, I suspect everyone else will view it as old-fashioned and Amish.”

Quick side note: We too have compromised on the black in Molly’s bedroom. She got new black curtains and some new black decor to accent her already purple and lavender walls and bedding.

Hermione tells me of  her and Ron’s trials and trauma and drama with Rose and it all sounds familiar…except in our case, Molly wants to do everything and be brilliant at it with no effort or practice and then complains about it.

“[Rose] wants to quit piano…. At which point she will be doing nothing. Nothing at all, except texting and watching Anime and doing homework. No sports, no interests, no extracurriculars, no hobbies,  nothing at all. Except homework and being nasty to her parents. Ron comes home and goes into our room and hides. Comes out for dinner and goes back in again. And then Rose is crushed he doesn’t pay attention, but when he does, she is so often nasty…. He over-reacts and she needs to be kinder. It is all driving me crazy. Both of them. And then the dog got sick….. but nothing to complain about, really. How you do it is beyond me and you have my highest regard….Hermione.

 Did I mention that the *Weasleys* are big Harry Potter fans? Anyway, here was my response back:

 Here is my secret to coping (if you can even call it that): Alcohol, Hermione. Alcohol. That and making friends with Zoloft.

 Keep in mind that sounding skilled and actually having the skills are very, very different things! We get by. We laugh, albeit sometimes quite maniacally, to avoid crying. Molly is at odds with Grant constantly. The ONLY reason she and I are not at the same odds quite as often is I just tune it out. When I just can’t take one more snide remark or sneer from her I just shut down and leave the room. I try my best to avoid any kind of raised voice at all. This is not my strong suit but practice is forcing me to get better at it.  

We also have been trying to apply ABA strategies that we learned at TouchPoint for Henry to all three kids. That is becoming easier too. It’s not usually very fun but at least the verbage is getting easier for us. Yelling just fuels Molly’s fire. I now try to state what is expected of her and remind her of whatever the consequences may be and then I walk away. She has been known to follow me around the house for HOURS whining and complaining, yelling, screaming, slamming things, getting in my face….and I just keep walking away, avoiding eye contact, every so often repeating the expectations and the potential consequences. I pretend to read or surf the internet. I pretend I am playing a part and there is an important critic in the audience so I’d better make this performance good! (I have a friend who does the same to win an Oscar~ for myself, I just want to get out of summer stock). I don’t let Molly see me cry.

 I have not read anything in forever. I have at least 5-6 books sitting on the shelf waiting to be read. My escapes right now are Facebook and blogging and Black Phoenix Alchemy Lab scents. I am pretty sure that I am going through a midlife crisis and my alter-ego is trying to keep me busy. She has her own Facebook page. She wears glasses. She is supposed to be working on writing a book. Lots of half-ideas….nothing formulated enough to actually write down. So, we blog. Everything is a potential blog post. Nothing is sacred. hmmmmm……yep, don’t be surprised if you see this reconstituted as a blog post at some point in the future.

 I don’t see that as coping at all. I see that as a crazed, under medicated manic/depressive hanging on by a thread and shutting down and escaping whenever possible. And for the record, my oldest is not always that bad all the time. She is an awesome kid….but you know, she is still a typical, hormonal 13-year-old! So, I concluded with:

So, see, I really am not handling this teen stuff or autism stuff very well at all. I suspect really most parents don’t, Hermione. We just do what we have to do to survive it. We will survive it! Hang in there! You know where I live and how to get in touch with me if you need to! I am out here in the muck too! ~Karen

I do realize that I have a pretty sweet gig here and certainly there are MANY parents out there going through much worse, much rougher times. I get that and I am ever so thankful for my family, my job and our life.  But there are moments, lots of them lately, where I just can’t seem to get a handle on things…so much feels out of my control. I feel lost. My husband always knows how to “find” me and anchor me. But he is tired too. I ask so much of him.

So, flash forward to now…this afternoon… I’m tired, anxious, and have LOADS of things I need to do. And I am still not getting any one thing done. The little ones are “playing” by destroying the basement family room. Laundry did get started but just that, started. At some point I am going to have to do some work that I actually get paid for… I guess I will try to squeeze that in sometime after I hard-boil about 2 dozen eggs for the family fun night of egg dying and decorating.

Oh, yeah, and that late Discover Card bill? I was so freaked out about it and worried we would lose our low APR, and Grant was too, that he called the company. Turns out I had paid that bill early sometime late last month. So, we weren’t late at all…

Oh yeah, and now I guess I CAN mark one thing off my list as complete! Blog post. Done! Now, where did I leave that laundry basket…?

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