Our journey in the Autism Spectrum

Plain and Simple

April is over. Autism Awareness month has passed for another year. This past month has been filled with blue lights and t-shirts, blog posts and discussions. I have been overwhelmed by the support of our family and friends. This means more to me that I can ever express! Knowing those of you who were willing to turn on a blue light or wear a puzzle piece t-shirt, or forward a blog or share my Chameleon Facebook page to spread awareness to those who may not know or understand about Autism Spectrum Disorders means the world. And the tireless efforts of the parent-bloggers out there are incredible! (I refer to the list of some of my favorites listed down the right-hand side of my blog page).

But despite the added awareness, our daily lives have gone on pretty much same as usual.  We have our  ups and downs and our tribe is very well aware every day the impact that autism has on the entire family. And there are many days where part of me wishes we didn’t have to be so damn aware.

It’s tiresome. Exhausting. Many times I just want to be done with it. I don’t want to talk about it, read about it, or blog about it. And then I check my e-mail, my Facebook. I see that friends and family have commented on my page or on this blog, showing support, letting me know they are there for us! Everyday I get new blog post notifications and status updates from some of the most wonderful, inspiring and just plain amazing people…most of them moms, who write with such beauty and HEART, about their children, their lives with Autism. Their stories may not always be pretty or fun or upbeat but they are always beautiful. And all of this helps me to keep going for my son. To keep writing. To keep advocating. To keep learning. Perhaps that is why we haven’t been able to bring ourselves to change out our blue porch light. We must keep going.

I’ve been trying to search for just the right words to express just how huge my feelings of appreciation are for everyone. Two little words, “thank you”, just don’t seem enough. So, I ask each of you, and those of you with children on the Autism Spectrum will most certainly understand this, imagine someone you love so dearly that cannot express themselves or has trouble with even the most basic of tasks. The frustration of it all. And now, imagine that they completed a task or used their words for the first time…how something so plain and simple can feel so HUGE.

With that in mind, I say “thank you”.

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Comments on: "Plain and Simple" (4)

  1. Thank YOU, Karen!

  2. I too find comfort in reading your posts and updates and thoughts and feeling sprawled across my screen. I do. So, thank you, for helping me to get through my day as well. Keep it up! And to heck with changing those bulbs. I figure leave them be year round, and as long as they are still shining then there will continue to be hope in our world. 🙂

  3. Thank the both of you for helping me better understand, and be part of your extended family.

  4. Wow…that was beautiful…as always….I thank you for your support….for your words….like Aimee we have not changed our bulb….I think keeping it up all year long is a great idea…

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